A Ryan update
As mentioned in my last post, due to concerns with many of Ryan's most recent symptoms, our usual 3 month follow up with his doctor was bumped up to this month. We had the MRI and the appointment yesterday. It was a very long, 12 hour day in Aurora. Here is the update: The doctor determined that many cognitive problems, addictive behavior, impulsive/deceptive behavior, and excessive lethargy that Ryan is increasingly struggling with is something called dopamine dysregulation syndrome. At the very least, because of Ryan's two resection cavities, the dopamine receptors are impaired and/or disrupted. The doctor has prescribed a new medication to help regulate the dopamine levels as much as we can until we learn more. Like us, the doctor is concerned that all these symptoms are coming to a head, and we're not seeing anything indicative on MRI scans. To remedy this, she has ordered another type of MRI to map his dopamine receptors to help determine the extent of dam